Sunday, September 26, 2010

You don’t even want to know

chalk 004

that I made this poor {very, very nice} couple

lay down on the ground in front of the

Philadelphia Museum of Art

because we just happened upon some chalk art!

And you definitely don’t want to know

that I told them to pretend they were corpses.

I mean that is insane, right?I_Heart_Faces_noborder_125x100

The things I do for I Heart Faces….

I have something really huge to share with you today.

One of my photographer friends, Kristen,

has a little girl named Molly.

She is in very critical condition.

I am going to share what she wrote on her Caring Bridge site.

I am asking you to pray.

This could happen to any one of our babies.

I have cried all weekend praying for sweet Molly.

Let’s lift her up, because God can do great and mighty things.

On Monday morning, 9/20 Molly woke up very excited. It was her first day of kindergarten! She had the cutest outfit all ready to go, her book bag packed and a genuine yearning to learn. Kevin and I dropped Molly and her twin sister, Kate along with big brother Ryan off at school. I watched my "babies" walk into school and just knew they would have a good day. Some how things turned very wrong.  Kevin had come with me in my van to drop them off so I took him back home to get his car so he could go to work. I then went back to the school to drop of some medicine to the school nurse. Molly and Kate have had breathing issues since they were infants, so I was dropping off their nebulizer meds and supplies. As I walked through the school doors, my cell phone rang. Then a teacher saw me and let me know, Molly had passed out and they needed me. Several staff members were running down the hall towards her classroom.  I got to the classroom and Molly was on the floor, very pale and looking so scared. She looked at me and seemed to know who I was. I was told that 911 had been called and help was on the way. We went to the hospital and after a normal EKG were sent home with instructions to make an appointment to have Molly seen by a cardiologist.  So Tuesday ended up being Molly's first day of kindergarten. She had a great day and loved meeting her new friends. Later that night, I went to check the kids and give them kisses before going to bed. Molly's breathing seemed very labored. I gave her a nebulizer treatment and she didn't seem any better. I called my mom and we decided given the prior days event, to take her to the ER. We were seen right away and had a great ER doctor that really listened to me and my "mommy instinct". She agreed that something was wrong. A chest xray was done and there was concern that there was fluid on her lungs. We were admitted to the cardiac unit so that Molly could be closely monitored. After spending the night in the ER and no sleep, some tests were done and several doctors examined Molly. An echocardiagram was done and I knew it was bad when the cardiologist came into the room and asked to speak with Kevin and I privately. It was then that we were told that our 5, almost 6 year old daughter had severe Pulmonary Hypertension. A lot of information was thrown at us and we were in total shock. We were told more tests would be done. My world just stopped. Right then, it all just stopped. How could this be?
Later that afternoon we met with another cardiologist and he explained to us just how severe this situation is. Keep in mind, I have not had much sleep and hospital time is like a time warp. Some of the details are fuzzy and I am in complete denial that any of this is happening. So usually, Pulmonary Hypertension is found in adults and also sometimes in babies. Usually at birth or shortly thereafter. To have this happen in a child's Molly's age is very unusual. To have a robust, healthy, thriving child with this just doesn't happen too often. So we were told Molly would need to have a Cardiac Catheritization to gather info and see if there is any damage to her lungs.  The right side of her heart is enlarged, indicating that this has been going on for a while. How long, we don't know. Why, we don't know. Is it treatable, we don't know. There are a lot  of unknowns and we are hoping for some answers with the cath. The cath was to take place on 9/23 at 1pm. At approximately 11 am, the cardio doc came to us and let us know we are going to wait until next week to do the cath. Other tests need to be run and we want to do this as carefully and safely as we can. Molly is currently stable. She is on oxygen but otherwise, she is not being treated. The doctors could give her medicine to start treating it, but we want to be able to get the best "picture" of what is going on so we know where to go from here.  If there is a structural abnormality that is causing the problem it can likely be fixed. If we can't find a "why" that makes this all more difficult. A lot will depend on the condition of her lungs. It is possible that there is lung damage especially since this has likely been going on for a while.  So for now, we wait. And wait. I am staying with Molly and with the help of some family and friends, Kevin is taking care of Kate and Ryan. There's a few more details to the story but we really aren't sure of anything right now so as we get more results and info, I will update here. We need prayers and lots of them. I will NOT accept that my beautiful baby girl is going to do anything other than get better. The doctors will figure this out and they WILL fix her!!!!
Kevin and I greatly appreciate all of the love and support shown to our family thus far and ask that you continue to keep Molly in yours thoughts and prayers....

Here is a link to a website about Pulmonary Hypertension.

52 comments:

Ami said...

Sending good thoughts.

And did you really ask complete strangers to lie on the ground... and they DID it???

Yelena R. said...

It's true! God can do great and mighty things! Will pray for Molly!

lifebythecreek said...

First of all, I'll be praying for sweet Molly and will head to her CB site to leave some love. In an instant, life can change. But God never changes, so holding on to Him is what keeps it from spinning out of control.
And really, these were strangers? How do you do it? Gracious, you are amazing....

Tracy P. said...

Yes, praying for Molly. Yikes!

That picture reminds me of Bethany when she was little and would do the "boneless" tantrum on the floor. Lee and I would look at each other trying not to laugh and say, "Get the chalk!"

Kristina P. said...

I think the chalk thing is cool!

Prayers for Molly and her family.

Buckeroomama said...

I'll be praying for Molly and her family.

Lori said...

How sad and scarey. Of course I will pray for Molly and her family and the doctors treating her.

I love the photo...I love that you asked them to do this! :)

Marvett Smith said...

I have Molly in my prayers!

Adrienne in Ohio said...

I was just getting ready to e-mail you to see if there was an update. So glad they've got a Caringbridge page--it's such a great tool for keeping family and friends updated. Molly's at the top of my prayer list tonight.

Love the chalk photo!

sls said...

Sending prayers for Molly!!

And they look like pretty happy corpses to me ;)

Danielle said...

My little girl is the same age as Molly...I can't even begin to imagine what they are going through. My prayers are certainly with them.

Diana said...

I am also praying for Molly and love the chalk photo!

Christina said...

Life is so crazy! I'll pray for this sweet family.

Your pictures are always fantastic. I think you might be one fun person. :)

Kristen Mintz said...

I love your photo. I'll be sending prayers to little Miss Molly. May she heal quickly! Bless you for re-posting this and getting lots of prayers from strangers! :)

Raymonde said...

Lifting Molly and her family in prayer in the Name of Jesus.

Super daring photo. Love it. xxx

Sonya said...

Sending prayers to Molly..my heart weeps for them.

Marilyn said...

That is so sad. Paryers for Molly and her family are my priority. Pretty persuasive gal, you are. Lying with white chalk and a black dress---yup, pretty persuasive. Or did you bribe them? Just kidding.

Dina @ 4 Lettre Words said...

Oh, Becky. So sorry to hear about sweet Molly. Luke had pneumonia twice last year so I know what that breathing sounds like. They are all in our prayers.

Love your photo! I had nothing this week for ihf, so I'm playing along with a few other challenges.

laura said...

cute shot! touching story, ;(

Amy @ Living Locurto said...

Praying for Molly!

As for the chalk entry. I got a good kick out of that. Love the photo:-)

Formerly known as Frau said...

Praying for Molly and her family!

Formerly known as Frau said...

Praying for Molly and her family!

Formerly known as Frau said...

Praying for Molly and her family!

~Laura said...

Sending lots of prayers out to Molly and her family. Every mother's worst fear...

Kelly said...

Molly and her family are in my prayers. My sister was in the hospital for a month with pulmonary hypertension. I hate that someone so little must deal with it.

Cheryl said...

Lots of prayers and hugs are being sent to Molly and her family, I can not imagine what her parents are feeling right now...

Fresh Mommy said...

First off, I'm in tears and praying for the entire family and especially for that sweet little girl. Thank you for sharing so that we can all stand with her in faith!

And secondly, what a fun pic! LOL, I love your spirit. :)

~Tabitha

Rebecca said...

Certainly will pray for Molly! And her mom and dad.

You crack me up with your chalk entry.

Elizabeth said...

LOVE the chalk story... Will definitely be sending thoughts your way for Molly.

Mighty M said...

Praying for sweet Molly.

Maggie May said...

I am so sorry to hear about this trouble with Molly.
I have lifted her up in prayer.I sincerely hope things improve with her health.
Maggie X

Nuts in May

Natalie said...

Still praying for sweet Molly! Wonderful picture too!

Kim Kravitz said...

Love the chalk image!

Busy Bee Suz said...

Lifting Molly up in prayer.
xoxo

Maddy said...

Oh no! Poor baby! My prayers are with Molly and her family!

Maddy said...

Oh no! Poor baby! My prayers are with Molly and her family!

Baloney said...

Frightening.
I will keep her in our prayers.

Brooke said...

i love the chalk picture!

i'm send up some prayers for your friend and her family!

Daria @mominmanagement said...

Holy Cow. I have tears streaming down my face after reading this... It is my worst fears come true. I feel so badly for those parents. Such hope, such joy and now the waiting... The wait has to be the worst. All the anxiety, the unknown, the fears spiraling...Give me the known - let me know what we're facing - then I can move forward and tackle it.

My prayers are with this family and Molly. Her mom is right. The Drs. WILL fix her. No other option.

Tracey said...

Prayers for Molly
Great photo! I love your photography as always!

Sarah said...

Absolutely right, God can do great and mighty things... and praying that He will.

Jabacue said...

Sending as much positive energy as we can muster from the east coast of Canada!

Kat said...

First - sending good positive thoughts and prayers your way with the hope that Molly will be right as rain very very soon.

Second - I just loved the chalk art picture. I can't believe that you asked them to lay on the ground and that they agreed!

Lastly, thanks for stopping by my blog. I am glad that you stopped by on a day where laughs were so prominent - I hope it made for a good laugh that you so sorely needed.

Puna said...

You are too cute! I'm sorry about your friend's baby. I wish that we could fix the entire world.

Skeller said...

Becky - firstly, love love LOVE your "insane" chalk shot. I'm guessing it's your delightful, winsome personality that could charm anyone into doing anything ... like lying on the ground pretending to be grinning corpses ... ;-)

secondly, I'm praying for God's wisdom in determining treatment, his mercy in completely healing this precious daughter, and comfort the family.

btw, I'm no doctor, but ... the twin sister is being checked for this same physical abnormality, too, isn't she?

Lynn said...

Oh my. My thoughts and prayers are with your friend's family and Molly.

amy said...

That is pretty insane but they looked like great sports. Fun picture :)

peapodsquadmom said...

love your chalk shot. and what fabulously great sports those two strangers were!

will pray for molly, for her doctors, for her family. i cannot imagine...

SBSAKE Photography said...

laughing so hard at the chalk layout!!

Many prayers for Molly and the family and friends.

My Photographic Eye by Irela said...

Keeping Molly in my prayers. <3

And your post is amazing. How creative you are in your photos and your writing. Awesome!!! :)

Adeena said...

Awesome picture!!

And prayers for Molly.

Capturing Sunshine said...

Praying for Molly and her family. Praying for comfort and knowledge and peace. Praying for a healing heart. Praying for a doctor's knowledge and expertise in treatment. Thank you for sharing this. In His Love, Hayley

By the way, funny photo. I almost forgot about it as I entered into the rest of your post. xoxo